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The last 12 months! (long)
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Supporting Member of Barthmobile.com 03/22
posted
Well friends, it has been an interesting year, last May after some indication, doctors found that I had 3 kidney boulders, 1 being 10 mm and the the other 2 were 8 mm. As I had timing activities to do at Colorado Mile and Texas Mile I delayed further tests until late September. A further investigation of my bladder showed some irregularity that doctors felt needed attention. Surgery to take out the kidney boulders was set for November 15 so I could still do the timing function at Texas Mile. (Colorado Mile was already done)
After I returned from Texas I had a brief discussion with my urologist and it was his opinion that in addition to kidney stones I had bladder cancer! Stone removal went well along with a scoping out of my bladder and samples sent forth for a pathology report. Report came back with confirmation of a T1 tumor and CIS cancer. I started immunology treatment as soon as the kidney healed. I had resigned from Texas Mile activities and MKM Mojave activities previously to concentrate on treatment as so many unknowns were popping up!
I was concerned about my treatment as my urologist was doing and accepted treatment but a second opinion suggested that I have surgery to remove a bladder diverticulum where the tumor was located. Thru a kind friend, I was put in touch with Stanford cancer center and in particular a bladder cancer specialist. He immediately scheduled me for another bladder scope and he further confirm cancer and that with blue light (and white light) indicated that all cancer was present in the diverticulum. He suggested removal of that area and he further thought he could preserve the remaining portion of the bladder.
I was able to work the Mojave Magnum event as my surgery was postponed until April 25. Surgery went well and further was confirmed that the cancer was only in the diverticulum and the main body of the bladder was cancer free. Divertiiculum was removed along with a couple of lymph nodes all sent away for pathology tests. It was a long 2 weeks and finally got the pathology report back along with the catheter being out. The great news is that all the cancer was in fact completely removed, margins were negative as well as the lymph nodes were negative. I can say I am cancer free but we all know cancer can return!
I will start further immunological treatment to raise my immune system response May 24 for 6 weeks, 1 treatment per week. In the mean time I will start to return to my normal grumpy old man self, HaHa. I have certainly been blessed on this journey and to those that knew of my situation for their prayers, God has a path for us all! I now have been given more time to give back to a life I have gotten so much from!
A special thanks to people like Rachel Edberg who will be riding a bicycle with a group of dedicated young people (texas4000) from Austin Texas to Anchorage Alaska to contribute to further research of cancer. I have sponsored her and Inspirit I will be riding with her and the others. God bless her journey!


Ed
94 30' Breakaway #3864
30-BS-6B side entry
New Cummins 5.9L, 375+ HP
Allison 6 speed
Spartan chassis
K9DVC
Tankless water heater
 
Posts: 2177 | Location: Los Gatos, CA | Member Since: 12-08-2005Reply With QuoteReport This Post
Supporting Member of Barthmobile.com 2/16
Captain Doom
Picture of Rusty
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Glad to hear your outcome was as favorable as mine - I had a small lesion on the liver, which is cured...


Rusty


MilSpec AMG 6.5L TD 230HP; built-to-order by Peninsular Engines:  Hi-pop injectors, gear-driven camshaft, non-waste-gated, high-output turbo, 18:1 pistons.  Fuel economy increased by 15-20%, power, WOW!"StaRV II"

'94 28' Breakaway: MilSpec AMG 6.5L TD 230HP

Nelson and Chester, not-spoiled Golden Retrievers

Sometimes I think we're alone in the universe, and sometimes I think we're not.
In either case the idea is quite staggering.
- Arthur C. Clarke

It was a woman who drove me to drink, and I've been searching thirty years to find her and thank her - W. C. Fields
 
Posts: 7734 | Location: Brooker, FL, USA | Member Since: 09-08-2005Reply With QuoteReport This Post
Supporting Member of Barthmobile.com 3/18
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Ed, so glad your results turned out well. You have been blessed!
I have not forgotten getting together some day for that cup of coffee.
Randy
 
Posts: 18 | Location: Northern California | Member Since: 12-29-2017Reply With QuoteReport This Post
Supporting Member of Barthmobile.com 1/12
Picture of carlflack
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ED: I'm glad you had excellent results.Rusty: Glad you made it also. For me my prostate is not doing too good. Had a bad kidney infection. Gave Betty a scare when I went into a "Code Blue". Now I have a catheter for the rest of my life. Doctors think my age (90) is too old to start cutting now......Carl


Former owner of "THE TOY"
1988 Barth Regal SE 33' Tag
1992 Barth Breakaway 32'
2005 Coachmen Mirada 32' DS

 
Posts: 592 | Location: North Fort Myers, Florida, USA | Member Since: 11-20-2004Reply With QuoteReport This Post
Supporting Member of Barthmobile.com 3/22
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Ed glad you beat it with the help of God and good Dr's. Hope we are still in the plan for the GTG. I am pretty sure Kenny's singing help cure all ills. Hope to see you then. You and a couple of others have been quiet for a while and hope they are also doing well!


Dana & Lynn
1997 38ft Monarch front entry
Spartan Mountain Master Chassis
Cummins 8.3 325hp
Allison MD-3060 6 speed
22.5 11R
Cummins Factory Exhaust Brake
8000 watt Quiet Diesel Generator
9608-M0022-38MI-4C
Christened Midnight

1972 22ft
Christened Camp Barth
 
Posts: 1384 | Location: Waseca, Minnesota | Member Since: 12-09-2010Reply With QuoteReport This Post
Supporting Member of Barthmobile.com 3/23
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Keep up the good "keeping up".
 
Posts: 1066 | Location: St. Charles, MO, USA | Member Since: 10-09-2003Reply With QuoteReport This Post
Official Barth Junkie
Supporting Member of Barthmobile.com 1/24
Picture of Steve VW
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Like Mary Ray says, getting old ain't for sissies, but it beats the alternative.

Keep up the fight we are all rooting for you. Hope to see you at the next GTG and many more.

Take care all, and be well Thumbs Up


9708-M0037-37MM-01
"98" Monarch 37
Spartan MM, 6 spd Allison
Cummins 8.3 325+ hp
 
Posts: 5168 | Location: Kalkaska, MI | Member Since: 02-04-2011Reply With QuoteReport This Post
Supporting Member of Barthmobile.com 3/19
Picture of Mogan David
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quote:
The great news is that all the cancer was in fact completely removed, margins were negative as well as the lymph nodes were negative. I can say I am cancer free


PRAISE GOD !
 
Posts: 2005 | Location: Jackson, Michigan, USA | Member Since: 04-18-2004Reply With QuoteReport This Post
Supporting Member of Barthmobile.com 3/19
Picture of Mogan David
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quote:
I had a small lesion on the liver, which is cured...


PRAISE GOD!
 
Posts: 2005 | Location: Jackson, Michigan, USA | Member Since: 04-18-2004Reply With QuoteReport This Post
Supporting Member of Barthmobile.com 1/21
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Ed, Rusty and Carl. Thumbs Up
God blessed us all.
I guess I can join your club. .... radiation 5 days a week
for 9 weeks .... PSA .02 cheers





#1 29' 1977parted out and still alive in Barths all over the USA




 
Posts: 1028 | Location: Floral City FL | Member Since: 04-25-2008Reply With QuoteReport This Post
Supporting Member of Barthmobile.com 3/23
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My best wishes and prayers go out to all of you, all get well and dance again!!!


1971 24 ft Barth Continental
P30 chassis
350 engine
 
Posts: 2047 | Location: Clinton Iowa | Member Since: 04-02-2017Reply With QuoteReport This Post
Supporting Member of Barthmobile.com 7/17
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Best to all of you. Thumbs Up


1986 31' Regal -1976 Class C
454/T400 P30 -350/T400 G30
twin cntr beds - 21' rear bath
 
Posts: 1026 | Location: Dayton, Ohio | Member Since: 09-27-2009Reply With QuoteReport This Post
Supporting Member of Barthmobile.com 1/12
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Ed I'm glad things have worked out well.


1978 Barth 17' Cabin Fever
1997 Barth 23' 4 door Command Center
 
Posts: 505 | Location: LaSalle CO | Member Since: 12-05-2007Reply With QuoteReport This Post
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    Forums    Misc. and Other Stuff    The last 12 months! (long)

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